Health Policy & Advocacy
ASPHO is committed to advocating and achieving one voice for pediatric hematology/oncology. The Society works in partnership with appropriate organizations to advance its advocacy priorities such as:
- Ensure adequate federal funding for research, surveillance and other legislation
- Improve access to drugs, devices and biologics for children and adolescents
- Promote adequate payment for care of children by subspecialists in pediatric hematology/oncology to support needed access and workforce
Be an #ASPHOAdvocate
Be part of the advocacy conversation! Follow ASPHO on Twitter at @aspho_hq and look for #ASPHOadvocates for updates. When posting about advocacy, we encourage you to include #ASPHOadvocates.
ASPHO Advocacy Webinar
Register to watch a recording of the ASPHO Advocacy 2021 webinar to learn about the Society's commitment to advocacy and health policy for the pediatric hematology/oncology field. The webinar covers ASPHO's advocacy priorities and legislation and provides an overview of our work with coalitions, outreach to Congress, the White House, and relevant federal agencies.
The Advocacy Brief is a quarterly e-newsletter informing members about legislative and regulatory issues that have an impact on the pediatric hematology/oncology profession and the patients we serve.
ASPHO participates in sign-on letters which are policy-oriented letters sent to members of Congress, congressional committees, or federal agencies expressing the viewpoint of the signatories. By participating in sign-on letters, ASPHO represents the views of the organization and its members on policy-related issues.
ASH and American Heart Association letter encouraging federal leaders to include two National Quality Forum (NQF) endorsed measures for sickle cell disease (SCD) screening in the Medicaid Child Core Measure Set August 2022.
COVID-19 Resources on Telehealth
Telehealth was broadened to address the COVID-19 public health emergency. Medicare coverage and payment for telemedicine services was expanded on a temporary and emergency basis. Please view updated information for providers surrounding telehealth:
Keep track of movement on ASPHO’s priority legislation, including funding for the Childhood Cancer STAR Act, the Gabriella Miller Kids First Research Act, the Sickle Cell Disease Comprehensive Care Act and the Accelerating Kids’ Access to Care Act . These are bills of importance to ASPHO concerning pediatric hematology/oncology and that we continue to monitor.
Many times, the best way to make an impact with a broad audience is to partner with a coalition that can help advance our priority issues. ASPHO belongs to the Alliance for Childhood Cancer and also the Sickle Cell Disease Coalition, the Emergency Department Sickle Cell Care Coalition, and the American Academy of Pediatrics.
Sickle Cell Disease Comprehensive Care Act Letter of Support November