Health Policy & Advocacy
ASPHO is committed to advocating and achieving one voice for pediatric hematology/oncology. The Society works in partnership with appropriate organizations to advance its advocacy priorities such as:
- Ensure adequate federal funding for research, surveillance and other legislation
- Improve access to drugs, devices and biologics for children and adolescents
- Promote adequate payment for care of children by subspecialists in pediatric hematology/oncology to support needed access and workforce
Advocacy Brief
The Advocacy Brief is a quarterly offering informing members about legislative and regulatory issues that have an impact on the pediatric hematology/oncology profession and the patients we serve. The digital publication is delivered directly to Society members' inboxes.
2019 Issue: March; June; September; December
2018 Issues: March; June; September; December
2017 Issues: February; May; September; November
Sign-On Letters
ASPHO participates in sign-on letters which are policy-oriented letters sent to members of Congress, congressional committees or federal agencies expressing the viewpoint of the signatories. By participating in sign-on letters, ASPHO represents the views of the organization and its members on policy-related issues.
ASPHO Sends Letter to Congressional Leadership for Model CMS Sickle Cell Disease Program April 2020
ASPHO Sends Funding Letter to House for Pediatric Subspecialty Loan Repayment Program March 2020
ASPHO Sends Funding Letter to Senate for Pediatric Subspecialty Loan Repayment Program March 2020
ASPHO Supports Title VII and Pediatric Subspecialty Loan Repayment Program February 2019
ASPHO Supports Funding for Pediatric Reference Intervals February 2020
ASPHO Supports Inclusion of Pediatric Subspecialty Loan Repayment Program July 2019
ASPHO Supports Funding for Pediatric Reference Intervals March 2019
ASPHO Supports Establishing Pediatric Subspecialist Loan Repayment Program February 2019
ASPHO Supports the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018
ASPHO Joins Multiple Pediatric Groups in Support of Gun Control Research
ASPHO Supports Sickle Cell Bill
ASPHO urges the Senate HELP committee to support the STAR Act
ASPHO Endorses Ensuring Children’s Access to Specialty Care Act of 2017
ASPHO Supports Establishing Pediatric Subspecialist Loan Repayment Program
ASPHO Calls on Congress to Extend CHIP Funding
ASPHO Concerned with Proposed Changes to Medicaid
ASPHO Supports Expanded Access Principles
ASPHO Expresses Concern with Immigration Executive Order-February 2017.
ASPHO Joins Medical Groups in Support of Science.
Tracking Legislation
Exciting new movement in legislation: Title VII and the Pediatric Specialty Loan Repayment Program were included in the CARES Act. Follow legislation that ASPHO is monitoring concerning pediatric hematology/oncology.
Coalitions
Many times, the best way to make an impact with a broad audience is to partner with a coalition that can help advance our priority issues. ASPHO belongs to the Alliance for Childhood Cancer and also the Sickle Cell Disease Coalition, the Emergency Department Sickle Cell Care Coalition, and the American Academy of Pediatrics.
